Forced onto my knees to beg for support

Re blogging this from Faithmummy.wordpress.com
This is the reality for the majority of families with autistic children, every department passes the buck to the next, years on each waiting list just to be told you ‘don’t meet the criteria’ and laughably little support or respite.

faithmummy

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I try to stay positive. I try my best to work within the system and I am very grateful for each and every professional involved with my children. But right now I am forced onto my knees to beg just for basic support and it is disgusting.

Here are some examples:

My six year old child is non verbal. He has complex medical and developmental needs. He has a diagnosis of classic autism, neurofibromatosis type 1, global developmental delay, severe learning disability, vision impairment and pica. He attends a specialist school miles away from our home. Yes despite the fact he can not jump, balance on one leg, speak a single word, dress himself, is not toilet trained and his understanding is very limited, he is not able to receive any physiotherapy or speech therapy! You see apparently they would not ‘add value’ to what he already receives, which in…

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